Contagious

My daughter has struggled to keep friends through the ups and downs of being chronically ill. I’ve watched this happen for years and have been thankful for the understanding friends that she has… Read More →

Good Days

Mariah’s follow up appointment for labs and infusion didn’t go as expected. Considering how tired she’s been lately, all the stress she’s been under and the fact that we just experimented with almost… Read More →

The 3 Month Stretch

My daughter’s last infusion was three months ago. YES. Three months ago. How does a girl go from bi-weekly infusions to a 3 month stretch? You’ve missed a lot. Before Mariah’s state pageant… Read More →

Would’ve Been

This week, actually at this exact moment, we would’ve been checking in to the National pageant in Southern California if things had gone according to plan. I don’t know why I expected them… Read More →

The Results

With all the work we’ve been doing with Mariah to prepare her for last weekends pageant, I didn’t have the time or energy to write anything. My bad. I’ve had a few people… Read More →

The Reality

picking up from where I left off on “Take Chances” ……. It wasn’t until we reached the orientation that I realized the extent of her limitations. Her IV was in her right arm… Read More →

Take Chances

The first of these lessons learned that I’m going to share came from my daughter. Even though she’s my middle child, I’ve decided to share her story first because out of all of… Read More →

Lessons Learned

“In three words I can sum up everything I’ve learned about life: it goes on.”  ― Robert Frost Sometimes life throws you a curve ball, or three. These last couple of months have taught… Read More →

Conflicted (20)

…. picking up from What Kids? (19) in my posts from My Journey Here Things started to change rather quickly after that. My dad helped to get my mom into a battered women’s shelter… Read More →

Fingers Crossed

Well it’s Thursday, and although I’m not sitting at home I thought I’d share some thoughts. (13) couldn’t wait for today. I thought this to be rather strange. See, today is infusion day and… Read More →